by Angela Simone & Mario Calderini
Read the full article ‘Give citizens a seat at the table’, co-authored by the TRANSFORM Project Coordinator, Angela Simone (Fondazione Giannino Bassetti) on citizen engagement and social innovation and their potential to shape the future of R&I in Italy. The article was recently published in Nature Italy, the regional digital magazine, published by Springer Nature, reporting on scientific research and issues of science policy in Italy.
On the 31st of December 2020, TRANSFORM concluded its first year of implementation. On this occasion, we reflect on the project’s activities and outcomes. We kicked off the project in the midst of the global pandemic, which in the end, accompanied us the whole year through and beyond. Despite challenging circumstances and shift to the virtual space, we found a shared vision among the partners and launched the tasks as planned.
Endometriosis affects 10% of girls, women (and sex-gender diversities) of reproductive age worldwide. Its diagnosis takes between 8 and 10 years from the onset of symptoms, a time during which these people suffer serious physical, psychological, social and professional consequences. Participatory research on endometriosis has resulted in the co-creation of 6 general and 28 specific recommendations, written in the first person by patients, with the aim of informing public health policies and contributing to improving the clinical approach and care services to patients.