The second pilot is developed together with Sant Pau Hospital and the Catalan Agency for Health Quality and Evaluation (AQuAS) to tackle the invisibility, under-diagnosis and lack of research into endometriosis, a condition affecting people worldwide of which the exact cause still remains unknown.
The first phase of the pilot will consist of collecting information from a wide and diverse range of people suffering from endometriosis. The collected data will gather first-hand experiences of people with this condition and their assessment of and needs for diagnostic, care, support services and resources, all this feeding a policy brief addressed to policy makers and healthcare staff and officials with a view to improving care and support services for patients with endometriosis.
The second phase of the pilot will bring together women and healthcare professionals in a co-creation exercise of a tool designed to improve self-awareness of one’s body and early diagnosis of the disease.