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Photo by Frederic Bartl from Pexels. 

Pilot 2. Endometriosis in the first person: participatory research on experiences, assessments and needs of people with endometriosis

This is the second pilot project defined by the Catalan cluster, in collaboration with Sant Pau Hospital and the Catalan Agency for Health Quality and Evaluation (AQuAS). It consists of involving women suffering from endometriosis in participatory research to learn more about their experiences and their assessments and needs in relation to health services for the care of the disease. The aim is to jointly draw up a report with recommendations to inform the new Endometriosis Care Model in Catalonia, which is currently under review.

The first phase of the pilot involved 24 women from Catalonia who had been diagnosed with endometriosis. From April to July, in 4 sessions, these women have shared first-hand accounts in a structured way on different aspects of their experience with the disease and their needs in relation to the health system. In the last session, they participated in the writing of a first draft of the recommendations report.

NEXT STEPS 

The next phase consists of analysing the information gathered and drafting the final report with recommendations, a phase in which women will also play a leading role, together with and on equal footing with the experts of the Catalan cluster.

At the end of the pilot, a public presentation of the results will be organised, inviting all the actors in the territory involved in endometriosis care services at different levels. 

Catalonia cluster - health pilot

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Photo by Adrianna Calvo from Pexels.

Pilot 1. Citizen science for the co-design and implementation of an “interactive waste game” that contributes to improving the selective collection of municipal waste.

This is the first pilot project defined by the Catalan cluster, in collaboration with the municipality of Mollet del Vallès and the Autonomous University of Barcelona. It consists of the co-design of a digital waste game that will be used as a citizen science tool to collect information on preferences and barriers to the implementation of innovative waste management systems such as door-to-door collection and smart containers. The results of the pilot will inform Mollet’s territorial specialisation project towards Zero Waste and the municipality’s waste management plan. 

In the first phase of the pilot project,  10-13 citizens from Mollet took part in two participatory sessions. The involved citizens represented different profiles in terms of age, gender and social class. These exercises served, on one hand, to raise awareness about the topic, and on the other, to  co-design the hypothetical scenarios (pros and cons of the different innovative systems) that will form the basis of the game.

Catalonia cluster Waste pilot

NEXT STEPS 

The results of the two sessions are now being used to create guidelines on the requirements for the development of the digital waste game.

In the coming weeks, the development of the waste game will begin, followed by a testing and implementation phase in February in several local schools. The introduction of the game in classrooms will be accompanied by supporting materials. Afterward, students will further distribute the game to their families, friends and close social environment.

Through the obtained data, the town hall, together with the other actors, hope to get a clearer picture of what citizens want in terms of the local waste management system.


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The European Week of Regions and Cities (11 – 14 October 2021) brought together more than 17.600 participants in four days packed with more than 300 sessions dedicated to four themes – green transition, cohesion, digital transition and CITIZEN ENGAGEMENT. 

Citizen Engagement TRANSFORMing regional R&I policymaking

On 12 October 2021, TRANSFORM organised a participatory lab ‘Citizen engagement TRANSFORMing regional R&I policymaking’ within the European Week of Regions and Cities. 

The session brought together an audience with a genuine interest in citizen engagement from different regions of Europe, representing public authorities, academia and research, as well as NGOs and CSOs.

First, the speakers briefly presented three citizen engagement methodologies – co-design, co-creation and citizen science – tested in TRANSFORM regional clusters in Lombardy, Brussels-Capital and Catalonia. This was followed by an open discussion in breakout rooms where participants explored how these three methodologies can help enhance regional R&I decision-making, discussing the benefits but also various challenges that might arise in the process. The outcomes of these discussions were clustered and presented to the audience, also giving space to participants to share their thoughts and views.

You can access the recording here

TRANSFORM #EURegionsWeek infographics

EU flag This project has received funding from the European Union's Horizon2020 research and innovation programme under grant agreement No 872687. This website reflects only the authors' view and the REA and the EC is not responsible for any use that may be made of the information it contains.
Project Coordinator: Angela Simone Fondazione Giannino Bassetti angela.simone@fondazionebassetti.org
 
contact: info@transform-project.eu